Dexcom Share – Week One
This past year I’ve been interested enough to read about the #wearenotwaiting crowds’ experience with their CGMs and special rigs, the initial Dexcom cradle set up, and now the official Dexcom Share. As a mom of a teen with diabetes (why hasn’t anyone started the TWD acronym?), I had mixed feelings about seeing my teen’s data all the time, and know I’m not alone in this as there are other stories about watchfulness, like this Bigfoot experience.
It’s why we got the Dexcom in the first place. That, and the results at the time placed Dexcom in the top position on accuracy.
When Diabetes Specialty called to tell me that we were eligible for Dexcom Share, I was thrilled. I also took a moment to privately acknowledge this as one of the few times in my life as a type 1 mom where I was successful at practicing patience. The rough part of using the Dexcom Share is my kid “wanting” to wear it. Luckily for us, it came at the beginning of summer and was a condition of her being able to go to an amusement park without parental back-up camping out in the water park. It’s hard to let a kid go. It’s even harder to let a kid with diabetes go. I’m learning.
Enter info into the receiver as normal
Download the “Share2” app on the TWD iPhone
Download “Follow” app on the parental unit iPhone(s).
NOT SO MUCH:
Keep receiver within 20’ of kid (I find it a little less)
Keep Share app running in the background on kid’s iPhone
ARE YOU KIDDING ME?:
Keep iPhones charged
Keep Dexcom charged
Keep brain charged
Looking normal. When out, chuck receiver in diabetes bag and hold iPhone to body with imaginary Velcro. Open Share2 app. Look at number. Look normal. Quick Snapchat friend, because teen.
Follow app has alarms you can set for highs and lows. Having the phone with all other notifications off other than Dexcom Follow, makes for a peaceful night’s sleep unless Share alarms. So far, this week all we are getting are low alarms. Because summer.
After a full day of play at the amusement park, she woke up to vomiting, moderate ketones, low BG’s and a low-grade fever. I’m convinced our normal Dex has saved her life several times in the overnight. No doubt Share will do the same, but also allows us to still see her numbers on our phones and get alarms on our phones as we’re packing a bag for a potential hospital trip, or scrambling in the green cupboard for the Zofran.
This is more of a worry than a hate. She’s all Wemberly about us getting on her back about her numbers. I assured her that ANYONE young like her, or a little older than young, is also worried about people getting on their case about numbers, but having someone you trust have your back wins every time. In growing my teens I often refer to Big Brother, as in George Orwell’s dystopian classic 1984, not the tv show. I read 1984 soon before I graduated high school in 1984. This novel stuck with me as I identified with it at a time when what I wanted most was privacy. I know as I grow my teens what they crave most is independence and privacy.
Trouble is, Dexcom Share gives her independence, yet takes away privacy.
I get this need in her and have been very good so far about not calling her out on numbers. I did offer one suggestion for her to try to navigate the coasters in the high 100s, not the high 200s. Soon after, I saw numbers come down. I was Big Mother in that proud moment, and my timing was perfect. I know some other time I’ll lose my shit and not be perfect. I’m sure there will be much more to read here about Share as time goes on.
Carrying a small brick like this to re-charge, instead of a cute thing.
She needs it in the first place.
Bye <— as to not end on a word count of 666. *shudder*